The mitochondria are known as the “powerhouse of the cell”. They provide the energy we rely on to live and thrive. Those with mitochondrial disease lack adequate energy to support normal function and growth. It is a complex disease that presents itself in many different ways. It is an inherited disease, affecting one in 2,000 children in the US by age 10 years old. It affects multiple organs of your body in varying degrees. Some can lead a fairly normal life, others deal with multiple issues affecting organ health.
Another complication of mitochondrial disease is that it is very difficult to diagnose. Those that have it are often misdiagnosed or not diagnosed missing out on opportunities to get the treatment and supportive care that they need.
Organizations that support Mitochondrial Disease treatment and research:
MitoAction and United Mitochondrial Research Fund both raise funds for research and supportive care for those patients and families dealing with mitochondrial disease. For more information or ways to become more involved, please check out their websites; www.mitoaction.org and www.umdf.org
Their goals are to raise awareness and provide services to improve the quality of life for those dealing with the multiple medical issues surrounding mitochondrial disease.
Another complication of mitochondrial disease is that it is very difficult to diagnose. Those that have it are often misdiagnosed or not diagnosed missing out on opportunities to get the treatment and supportive care that they need.
Organizations that support Mitochondrial Disease treatment and research:
MitoAction and United Mitochondrial Research Fund both raise funds for research and supportive care for those patients and families dealing with mitochondrial disease. For more information or ways to become more involved, please check out their websites; www.mitoaction.org and www.umdf.org
Their goals are to raise awareness and provide services to improve the quality of life for those dealing with the multiple medical issues surrounding mitochondrial disease.